Thứ Bảy, 21 tháng 3, 2020

Savage as hell but I still need cuddles shirt


My kid has an invisible disability where standing / walking for a long time causes pain. But avoiding walking / standing causes pain and causes other issues as well. So they will walk for a while, and then rest for a while. There are very nuanced signs of their disability, but if you don’t know to look for it, you won’t see it.We also go to Disney World, so it’s a challenge we face every trip where we walk miles and stand for hours a day. It’s never fun to wake up at 3am to a screaming kid who’s legs feel like they are ripping apart.It was so bad we moved back to a stroller so people just thought we were pushing a larger kid. But now we are well over the max height, and getting to the top of the weight limits. So it’s back to a wheelchair for longer walks.I don’t think I should have to make a sign that says “I have a medical condition that causes me pain while walking / standing. But I also need to walk / stand some times to maintain my abilities and not further cause damage to my muscles. Please don’t be judgmental because you don’t see all the facts.” but some days I feel like it would help.I wish there was more awareness to this. Like a green ribbon or something we could just pin on their wheelchair so people knew they have an invisible disability and not be an asshole.


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SOURCE: Happy new year shirt

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